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        Compiled 
        by Kota Discussion Group 
         
        In Honor and Loving 
        Memory of Our Children 
       
       
         
          Welcome to Part II of 
          our Grief Jouney Q & 
          A. The content here is 
          generated from an online 
          discussion and support 
          group for bereaved parents. 
          The creator of this Grief 
          Journey Q & A is Stephanie 
          Marrotek who posts questions 
          once a day or couple times 
          a week and invites all 
          members of the discussion 
          group to post answers. 
          In addition to answering 
          on the group, some members 
          have elected to share 
          their insights in a more 
          public way through this 
          column. Our hope is that 
          you will find some spark 
          of inspiration or comfort 
          or help here. These words 
          are not offered as prescription 
          for the ways we "should" 
          handle grief. These are 
          just insights into how 
          others are managing day 
          by day after the death 
          of a child. 
       
      
        Have you ever 
        had someone tell you that 
        their grief is WORSE? Why 
        did they think that? 
       
         
        Yes, I had a facilitator 
        at a grief support group 
        tell me that everyone else's 
        grief was much worse then 
        mine, because my loss wasn't 
        a real loss in that I never 
        got to 'know' my Son since 
        he was stillborn. Also, 
        a bereaved Mom told me once 
        that her pain was worse, 
        because she had more time 
        with her child then I did. 
        People are so clueless sometimes 
        and just don't understand. 
        If only they could spend 
        a day in my shoes and then 
        tell me if another's grief 
        is worse from the other...would 
        they still feel the same 
        way, I wonder. -Katie I. 
       
        Yes, the last town we 
          lived in, we were at a 
          church pot luck and I 
          was talking to this lady 
          who I had learned had 
          had a daughter die. I 
          knew no details, but I 
          figured that loss is loss 
          and that maybe we could 
          be supportive to each 
          other. WRONG I was! Her 
          daughter was 5 and had 
          drowned in their backyard 
          stream.....she told me 
          that my child was not 
          a child and my grief was 
          not real, because I hadn't 
          lived with her for 5 years.....That 
          her daughter was real 
          and live so her grief 
          was so much more. She 
          basically told me that 
          I didn't have a right 
          to grieve because Amanda 
          was stillborn and because 
          she had held and nurtered 
          her daughter for 5 years. 
          I was so angry. So I wrote 
          this poem: 
         Comparing Grief? 
        If your child died  
          when she was 5  
          and mine before her birth, 
          does that mean that your 
          grief is more validated, 
          more deserved? 
          Your daughter lived and 
          breathed and laughed. 
          Mine never got that joy. 
          So are you more deserving 
          of sympathy and understanding, 
          than I? 
          For if this were so, 
          then another, who's son 
          died at age 15, 
          her grief is more and 
          she has more 
          right 
          to cry than you or I. 
          Do you see  
          how silly you are? 
          How uncomparable grief 
          is? 
          So don't tell me that 
          I have 
          less of a loss, 
          don't tell me yours is 
          worse! 
          My grief is my own 
          and yours is your own. 
          Let it be 
          and don't compare  
          the value of a life. 
          By Stephanie Marottek 
          12/19/02 
        Writing this poem helped 
          me to feel a bit better, 
          but I wish I would have 
          had the courage to give 
          it to that woman, so she 
          wouldn't continue to hurt 
          other grieving parents! 
          But then if I would have 
          had the courage, I probably 
          would have made her even 
          more bitter.....whatever.....she 
          hurt me alot, and it wasn't 
          right! -Stephanie 
         
       
      Yes.... my aunt who said 
        losing her dog was worse 
        because she got to spend 
        time with her dog, and Nora 
        didn't really exist... gosh 
        I have so many telling me 
        this... -Christine 
       
        Good heavens, YES!!! 
          That seems to be one of 
          the first dumb things 
          that people feel compelled 
          to "share"! 
         
        For example, when we 
          lost our last baby, and 
          my SIL gave birth to twins 
          10 weeks premature...(they 
          are now 4 years old and 
          are thriving!) Well, I 
          was told that was soooo 
          much worse than our baby 
          who didn't matter, didn't 
          have a soul (though my 
          SIL's DOG did!), chose 
          to go back to heaven, 
          ETC!!!!  
        I always hear that it 
          is WORSE to have an older 
          child die...and I cannot 
          judge that, for gratefully 
          we have not experienced 
          that... 
        It's a sore subject of 
          silent grief, silent sorrow 
          (like to book by Perry-Lynn 
          Moffit), "grief denied" 
          for families who have 
          suffered the loss of a 
          baby....will it ever change??? 
          -Martha 
         
            
         
       
      I wasn't told that in those 
        words but I went to a local 
        agency that says it's purpose 
        is to offer grief support 
        to bereaved parents. They 
        conduct and interview before 
        you can attend their groups. 
        After  
        telling the woman who interviewed 
        me about Raeyn's stillbirth 
        she told me, "we support 
        people who have actually 
        lost a child." I was 
        SOOOOOOO angry. I took out 
        my picture of Raeyn and 
        showed her my perfectly 
        formed beautiful little 
        girl and explained to her 
        that I was in labor for 
        26 hours with her. I loved 
        her, I gave birth to her 
        and she WAS and will always 
        be my child. She offered 
        no apology or  
        anything...she sent me on 
        my way. 
      I did follow up with the 
        center director and was 
        told that the center is 
        run by volunteers and that 
        was the excuse. I was offered 
        the chance to participate 
        in their groups but to this 
        day, I am angered  
        by that place. How dare 
        they even suggest that my 
        grief or my child for that 
        matter is any different. 
        -Keny 
        
      : Lately I feel 
        like I am on an emotional 
        roller-coaster... What do 
        you do to bring peace to 
        your hearts, even momentarily? 
       
         
        I allow myself to take a 
        time out. I try meditation, 
        write in my journal or just 
        close my eyes and lay back 
        and relax all my muscles 
        and clear my mind. Also 
        calling a friend that will 
        listen and understands helps 
        me find some peace. If the 
        weather is nice, and I have 
        some free time, I'll take 
        a drive to the Garden of 
        Angels for some peace. -Katie 
        I. 
       
        I was given a teddy bear 
          at the hospital that wears 
          the first outfit that 
          we bought for Raeyn. I'll 
          lie in bed with it, cry 
          if I need to and remind 
          myself that she was "too 
          beautiful for Earth" 
          and that I will see her 
          again. ~Keny, Raeyn's 
          Mommy  
       
      I write my poetry, journal, 
        escape to the net to you 
        all, or just lock my self 
        into the bathroom and take 
        a shower and just cry. Walking 
        in the mountains also helps. 
        I make cards with stamps 
        and do crafts. That all 
        helps to calm me! -Stephanie 
       
        Eat chocolate. Well, 
          okay, that's the smart-alekie 
          answer. Seriously, sometimes 
          getting outside helps, 
          walk on the pier at low 
          tide, check out the starfish 
          and jelly fish and anemone 
          -- this whole underwater 
          world that is totally 
          oblivious to my personal 
          roller-coaster. Sometimes 
          that gives me a bigger 
          perspective and some peace. 
          If I could ever get back 
          to truly doing good self-care, 
          I know that doing yoga 
          or bellydancing makes 
          me feel very in harmony. 
          But I can't motivate to 
          do those things most of 
          the time, soo... Sometimes 
          watching movies -- but 
          I am selective about it! 
          DVDs like old Hepburn/Tracy 
          films or the Philadelphia 
          Story with Hepburn/Grant 
          -- or Return to Me with 
          Minnie Driver -- or Monsoon 
          Wedding (this is an amazing 
          one -- when the family 
          dances and sings as they 
          henna the bride!!! what 
          I wouldn't give to dance 
          in a group like that!!) 
          -K.- 
       
      I try and take a long walk 
        and soak up the sunshine... 
        it feels like its Nora's 
        love just surrounding me 
        with peace. I write in the 
        journal or just go outside 
        and stare at the clouds. 
        -Christine 
       
        Journaling helps my heart 
          to heal, just to release 
          it all is a relief! I 
          return to my favorite 
          "grief books", 
          a walk among the flowers, 
          a trip to church, just 
          quiet time... -Martha 
       
        
       Right after we 
        lost our child... our bodies 
        went into a form of shock 
        that caused thinking clearly 
        to be slowed down and perhaps 
        not done at all until a 
        few months afterward. Can 
        you think of anything that 
        happened in your period 
        of shock, that you wish 
        that you could do over, 
        now that you are thinking 
        more clearly and are a bit 
        more in control? 
       
       
         
        I wish I would have dressed 
        her myself. I was so shocked 
        seeing her, I expected a 
        pink healthy chubby looking 
        baby, just sleeping, and 
        seeing her, kinda dark and 
        skinny rocked my world.....When 
        they placed her in my arms, 
        I truely thought that I 
        was holding a chineese baby, 
        her skin was darker and 
        her eyes were just little 
        slits! I then realized that 
        this was the effects of 
        her being dead inside my 
        womb for a week before delivery.....I 
        do wish I would have had 
        the courage to dress her 
        myself. I was so scared 
        that I would break her, 
        or her arms would come off 
        or something. The Dr. had 
        told us before she was delivered 
        that she may come out of 
        me, in pieces! Thank God 
        she didn't, she was whole, 
        but I was very afraid of 
        that! But I wish I would 
        have asked a nurse to help 
        me dress her. 
        -Stephanie M. 
        http://www.geocities.com/marottek_s 
       
        Ouch, this is a sore 
          one! The one thing that 
          I would do after learning 
          about the death of my 
          baby, is to request, no...DEMAND 
          that I have to opportunity 
          to cremate the remains 
          of our dearly beloved 
          babies, no matter WHAT 
          anyone else said! This 
          would allow me a memorial 
          place if we so desired...and 
          I do so yearn for that 
          now. I know so much more 
          now, and thankfully that 
          has helped others in our 
          Share group...but it's 
          too late for us. Being 
          further down the road, 
          enables me to be more 
          of an advocate for bereaved 
          parents, even though no 
          one was there for us. 
          Thanks for letting me 
          get that out...phew! It 
          STILL hurts!!! -Martha 
         
       
      I wish that I did the planning 
        of Charles' funeral a little 
        differently. I wish I had 
        asked more questions and 
        had the clear mind to do 
        so. I wish that I had known 
        it would be okay not to 
        buy an urn through the funeral 
        home. It was so costly, 
        and I felt pressured by 
        them to choose one and buy 
        it during the  
        planning of his final arrangements. 
       
      I wish I had the clear 
        thoughts to find the right 
        words to talk to my Mom 
        instead of hardly talking 
        at all during such a difficult 
        first few weeks and months. 
       
      I wish I didn't pressure 
        myself to return to school 
        for final exams the week 
        after my loss just to flunk 
        out of my class that I had 
        an 'A' in up until I took 
        the test. I wish I took 
        more time off from work 
        to grieve privately. 
      I wish I had remembered 
        my car accident while I 
        was being interrogated rather 
        then spacing it out and 
        not realizing that must 
        have been the cause of the 
        placental abruption until 
        a few days after my loss. 
        I wish I had the right frame 
        of mind to tell the cops 
        to talk to me rather then 
        at me, when they have  
        some training in compassion. 
       
      I wish I had the clear 
        mind to demand to see my 
        Son and hold him in the 
        hospital and demand that 
        I get his foot/hand prints. 
       
      I wish I had the clear 
        mind to tell the doctor 
        that assisted me after I 
        gave birth to my stillborn 
        Son to f*k off, after he 
        told me to return to his 
        office in a month for a 
        post partem check up and 
        to be sterilized so this 
        sort of thing doesn't happen 
        again. I wish I had the 
        clear thoughts to tell him 
        to f*k  
        off, when he told me that 
        he had to leave to deliver 
        twins to a Mom that wants 
        her children, so he'll try 
        and come check on me later 
        if he has the time. 
      I can go on and on, but 
        then I'd have to write a 
        book on all that went wrong 
        during the early stages 
        of my loss.  
      Sincerely, 
        Katie I. 
       
        This question is so hard 
          for me, I was not there 
          right after she died, 
          nor two weeks after...and 
          then my physical recovery 
          and amount of meds just 
          made everything crazy. 
          If I would have had a 
          choice at anything..... 
          it would have to be the 
          funeral. I was not coherent 
          and on too many meds when 
          the funeral was planned. 
          I was in ICU when they 
          started, Barry and the 
          funeral director... so 
          it was a nothing funeral, 
          nothing special, no music, 
          poems or anything. I was 
          lucky I got to see it 
          at all so I didn't really 
          think about it, until 
          I met so many and learned 
          of their beautiful funerals 
          for their angels. Sometimes 
          I feel guilty, like I 
          should have been able 
          to be there to plan, like 
          Nora got cheated and didn't 
          have a very nice funeral. 
          It was such a quiet funeral 
          with hardly anyone there...I 
          don't know... still so 
          much guilt over this one. 
          -Christine 
       
      OMG, there is sooooooo 
        much I would change. I would 
        have had someone show us 
        Losing Layla in the hospital 
        to explain our rights. Or 
        I would somehow magically 
        have known my rights. I 
        would have demanded they 
        drive back to the funeral 
        home and get my son for 
        me. I would have demanded 
        they let my have him for 
        the whole 4 days I was in 
        the hospital. I would have 
        demanded they let us take 
        him home. I would have demanded 
        that we take him to the 
        funeral home. I would have 
        demanded that he be in-arms, 
        not in that fucking casket, 
        for the service. I would 
        have shoved his beautiful 
        little body into the arms 
        of those who now forget 
        that he was real so that 
        their arms would be heavy 
        with his death and they'd 
        have a sensory memory of 
        that. I don't know. Then 
        I have other days when I 
        think, "It was what 
        it was." And I just 
        let it go at that. Woulda, 
        coulda, shoulda never served 
        anyone, so why 
        do I even to think about 
        it? I don't know. -K.- 
       
        What would I do differently? 
          Better question -- what 
          would I do the same? 
        I wouldn't let my mom 
          and sister pack up all 
          my tiny little girl clothes, 
          my bassinet and my maternity 
          clothes, my baby girl 
          announcements and all 
          the boys things I had 
          deemed "okay" 
          for my little girl.  
        I wouldn't let my mom 
          and mom-in-law plan the 
          whole funeral and pick 
          out Lily's casket and 
          take her clothes to the 
          funeral home and pick 
          out the flowers and everything 
          else they did.  
        I would undress her and 
          look at every tiny inch 
          of her body. I would sing 
          to her and tell her about 
          her brothers and her family. 
        I would have told anyone 
          who said anything I didn't 
          agree with to go to hell. 
        -Melanie 
       
        
       Do you have a 
        set pattern of grieving 
        in your mind? What is it? 
        Have you been able to stick 
        to it? 
       
         
        HaHaHa! This question is 
        hilarious because I remember 
        the "stages" pamphlet 
        they gave us at the hospital 
        and I remember thinking, 
        even then, that I was already 
        off-the-map of the "stages" 
        -- so not only couldn't 
        I give birth correctly, 
        but geeeeeeeezus, I couldn't 
        even grieve properly! I 
        hate that bull. I hate that 
        they still teach it as a 
        way to trying to get 20-something 
        college kids to understand 
        shit that they will never 
        understand. I hate that 
        they still handout stuff 
        like that to bereaved people. 
        I HATE that the woman who 
        created the gawd-damned 
        "stages" has had 
        to defend herself to the 
        teeth because the FACT is 
        that she created those stages 
        for the person who was actually 
        going to die!!!! The reason 
        the last stage was "closure" 
        was because the person would 
        be DEAD!!! Those stages 
        were not written for the 
        bereaved who are left behind, 
        but does anyone listen to 
        the woman now when she says 
        that? NO! Dr. Elisabeth 
        Kubler-Ross has had her 
        work mis-represented for 
        like 3 decades + now -- 
        and the people suffering 
        from the mis-representation? 
        US -- bereaved people who 
        are left behind. It sucks. 
        Anyway, in the end, NO WAY, 
        there is no pattern, I don't 
        follow anything but my own 
        damn drum, and everyone 
        can just deal with that 
        in their own way -- including 
        those who think I "should 
        be over it by now"!! 
        -K.- 
       
        Yes, when we first lost 
          Amanda, our pastor gave 
          us a pamphlet entitled 
          The Three Stages of Grief. 
          And it says stage 1 is 
          Surprise and Shock: generally 
          lasts up to the funeral. 
          Stage 2 The extended period 
          of struggle: can last 
          for a long time. And Stage 
          3: Beginning to stabilize 
          or reconstruction. And 
          I thought to myself, that 
          is PRETTY VAGUE! So I 
          searched for more detailed 
          answers. Another pastor 
          told me there are 5 stages 
          to grieving 1) Denial 
          2) Anger 3) Blaming 4) 
          Bargaining 5) Acceptance. 
          I was quick to point out 
          to him, that there cannot 
          be a set pattern for grieving, 
          because we are all so 
          individual and unique. 
          For if I were to follow 
          this pattern, I would 
          STILL be stuck on #2, 
          however, I have been thru 
          all the others, in various 
          orders, sometimes several 
          times.  
        I do not think that there 
          IS a set pattern for Grief. 
          In my opinion, everyone 
          grieves differently and 
          in their own ways....It 
          angers me that people 
          try to put a title on 
          the "stage" 
          I am at, or give me a 
          time table. There is no 
          time table in grief.  
        So my opinion on that 
          has changed dramatically 
          since our loss, and during 
          the time following. It 
          may even change again. 
          I am a woman, therefore 
          I reserve the right to 
          change my opinion every 
          day if I so choose! 
          -Stephanie 
       
      Those stupid, stupid stages. 
      Someone said to me, you 
        really need to get past 
        the depression and anger, 
        it's not healthy to stay 
        in one stage too long.  
      I am thinking -- Oh great, 
        so I move through ALL of 
        the depression and anger 
        and I get to do what, exactly? 
        Start bargaining? Accept 
        that Lily's never coming 
        back? Move on with my life 
        and get pregnant again and 
        worry every second that 
        the same thing will happen? 
      I say, sorry, i don't think 
        it's healthy to listen to 
        you too long -Melanie 
       
        This is a difficult question. 
          I don't think there's 
          such a thing as a set 
          pattern. Everyone deals 
          with their grief differently. 
          Some days are better then 
          others. I have my good 
          days with my bad moments 
          and my bad days with my 
          good moments. I just let 
          it flow and allow myself 
          to feel however and whatever 
          I feel at the moment as 
          it comes. I cry, I vent, 
          I smile I feel what I 
          need and want to feel. 
          Charles will forever be 
          a part of me and so will 
          my grief. -Katie I. 
       
      Ha!!! "Set pattern 
        of grieving"....yes, 
        I used to feel that way, 
        ten years ago when this 
        whole new way of living/dying 
        began. All I had wanted 
        was "for it to be over" 
        and "to feel better"....and 
        I expected  
        it immediately!!! If not 
        yesterday! And then I began 
        to learn...from myself...and 
        others around me, but mostly 
        from myself...to give into 
        the grief, to allow it to 
        penetrate ever cell of my 
        body...and then some light 
        came. But that did not happen 
        for many months. Sadly to 
        say, with each subsequent 
        loss, I did learn more...my 
        babies have taught me a 
        lot. I remember my husband 
        saying at one point..."I'll 
        give you 18 months"...meaning, 
        that it often took me that 
        long to begin to integrate 
        the loss into the fiber 
        of my motherhood, wifefood, 
        familyhood. Not that after 
        those 18 months would I 
        be "ok", but by 
        then, a lot of the griefwork 
        had begun to take seed. 
        He's very patient, that 
        man! And now he is patient 
        and giving to the utmost 
        in his support of the bereavment 
        outreach. Heaven touched 
        earth when I met him.. .-Martha 
        
        
        Who were you the 
        most angry at, when you 
        learned your baby had died? 
       
       
         
        God... just God. I had prayed 
        the entire pregnancy, then 
        when they couldn't find 
        the heartbeat I began pleading 
        and screaming to God very 
        loudly.... and then they 
        told me she died. I felt 
        God betrayed  
        me. I know now differently 
        and am working very hard 
        but I was mad at God first. 
        -Christine 
       
        -- Myself. 
        -Melanie 
         
       
      First myself, then the 
        medical staff at the hospital 
        and ob/gyn practice. -N. 
       
        I was angry at God. I 
          was angry that He could 
          allow this to happen to 
          us, good people, when 
          there are so many out 
          there who do not deserve 
          their children and they 
          pop them out like nothing. 
          I was angry that He would 
          take away the daughter 
          that I so desperately 
          wanted. I think I am STILL 
          angry at God. -Stephanie 
         
       
      Initially, I wasn't angry 
        at all, but in a state of 
        shock. I didn't even know 
        I was pregnant. When reality 
        set that I wasn't just having 
        a nightmare, I was most 
        angry at myself and at God. 
        Angry at myself for not 
        knowing. And angry with 
        God for not saving my Son 
        from death. -Katie I., Mommy 
        to Charles  
       
       
        Well I was angery at 
          myself and wondering why 
          my body has to do this.. 
          And I had alot of WHYS 
          to ask God.. there are 
          so many of us who want 
          them but can't and there 
          are those who don't want 
          them and get them...UGH!!! 
          ~Sheila~ 
       
      Hmmm...I was most angry 
        at the God/dess coz I know 
        the MOMENT She took him 
        that night before -- I freaking 
        felt it happen, I swear! 
        I still have issues with 
        Her. Then I was really ticked 
        at my body for being so 
        stupid and incapable. I 
        mean there have been life-long 
        issues with the old body 
        since the days of being 
        like 11 years old and my 
        grandmother starting to 
        tell me that my hips were 
        too fat in one breath, while 
        doing the "eat, eat, 
        I slaved all day cooking" 
        routine. So to then have 
        the old bod fail with my 
        child -- well, you know, 
        that was just that. The 
        bod was officially on the 
        "crap list" and 
        the hatred set in strong. 
        There are parts I've come 
        to terms with about the 
        bod. But the secondary stuff, 
        PCOS, etc. well, I just 
        mostly continue hating bod 
        for it all. Of course if 
        you believe in anything 
        wholistic or energetic, 
        then the "hate" 
        energy is not helping me 
        heal at all --- which I 
        then feel guilty about, 
        etc etc, adnauseum :) -K.- 
       
       
        ANGRY....hmmmm? Don't 
          like that angry phase...denial 
          at its hilt, isn't that? 
          :) Anger scared me within 
          my grief. Guess for starters, 
          with each loss, I just 
          couldn't believe that 
          my body could fail again..so 
          angry at myself. Then 
          once I got really mad 
          enough, I screamed sooooo 
          loud up in my room into 
          my closet...at God! And 
          then I was afraid...and 
          thought, how can I be 
          mad at God, He's my best 
          friend...yet who understood 
          me better than He who 
          lost His only Son? From 
          there came anger at my 
          in-law family...and that 
          was a good escape...for 
          it was waranted! Anger....hmmm...still 
          uncomfortable with it! 
          Ugh! -Martha 
          
       
       Since we were 
        talking about anger..... 
        I get really angry when... 
       
         
        I get really angry when... 
        Others do not even try to 
        understand the depth of 
        pain of loss.... 
        Others belittle my grief 
        saying theirs is worse..... 
        Others try to "cheer" 
        me, sometimes I just need 
        to cry.... 
        I see teen moms pregnant 
        with a child they don't 
        want... 
        I see an overwhelmed mother 
        of 3 yelling at, slapping 
        or mistreating their babies.... 
        and when I think of how 
        unfair it is that our baby 
        died and others get theirs.... 
        Stephanie 
       
        I get really angry when...people 
          tell me to shut up about 
          my loss, it was two years 
          ago, life goes on, people 
          move on. Get on with it, 
          stop loving the dead and 
          love the living. Love 
          your living children, 
          not the dead ones. I get 
          so very angry because 
          that just shows their 
          ignorance and their stupidity...Can 
          you tell this just happened??? 
          -Christine 
       
      Well, this is weird, but 
        I get reallyl angry when 
        I do totally work that totally 
        is outside of the field 
        of loss and healing and 
        then people are not appreciative 
        of it. I mean that the outreach 
        I do in the loss and healing 
        field is like "mission" 
        work for me. I do it because 
        I have this *driving* need 
        to do it -- because I remember 
        feeling utterly alone and 
        isloated after my child 
        -- because I know what it 
        is like to laugh again and 
        have people assume it means 
        "I'm over it" 
        whereas bereaved parents 
        understand the complexity 
        of my existance now. But 
        it is not work that "makes 
        the ends meet" as it 
        were. So I do lots of other 
        more "commercial" 
        work that pays the bills, 
        right? Well, in that world, 
        I get totally and completely 
        and utterly pissed off when 
        people there don't appreciate 
        my time, energy, and skills!!!!!!! 
        I get mad because it's bad 
        enough I have to waste any 
        time, energy, and skills 
        on the "commercial" 
        world -- but to do so and 
        have it unappreciated -- 
        oooooooooooooh, I get sooooo 
        mad. I just want to scream 
        at them that there are four 
        more dead babies every hour 
        in the U.S. alone and they 
        have selfishly and unappreciatively 
        taken me away from doing 
        outreach or writing or doing 
        anything to help those bereaved 
        families!!!!!!!!!!! But 
        of course people in the 
        "commercial" world 
        don't get it. One, I don't 
        think any of them really 
        care until it happens to 
        them. Two, I don't think 
        they get how I feel I have 
        to steal time from people 
        in need to service the "commercial" 
        world in order to keep a 
        roof. Maybe I'm totally 
        insane, but that's my latest 
        anger experience. 
      I do also get really pissed 
        off when someone compares 
        stillbirth to abortion. 
        I realize there can be grief 
        for everyone. But I think 
        abortion is *choosing* to 
        end the pregnancy. Stillbirth 
        happened without the choice 
        of the parent. I just don't 
        understand how the two can 
        be compared. Though I do 
        think there is a grief response 
        for some who chose abortion, 
        too, and I do totally appreciate 
        programs like The Rachel 
        Project for them. But my 
        child was stillborn -- I 
        did NOT choose his death. 
        It just isn't the 
        same 
        .-K- 
       
       
        I get really angry when...Others 
          complain about spending 
          time with their children 
          and take the family they 
          have with them for granted. 
          I get angry when I can't 
          share Charles as openly 
          with others as I'd like. 
          I get angry when I have 
          to listen to clueless 
          pregnant women talk about 
          how wonderful it is to 
          be pregnant and blah blah 
          blah! -Katie, Charles 
          Mommy 
       
      I get really angry when 
        people just don't get it...grief 
        and loss, that is...and 
        I don't usually show it, 
        but normally it comes out 
        in other ways, such as grumpiness 
        or shortness with my immediate 
        family...you know, those 
        wondeful people we love 
        the most, who get most of 
        our garbage. I get really 
        frustrated when after all 
        these years, people just 
        don't get it...grrr! -M. 
        
       Do you feel you 
        could have prevented your 
        child from dying? Why and 
        how? 
       
         
        Yes, I feel that if I would 
        have went in to the dr. 
        earlier, when I first felt 
        no movement that they could 
        have done an emergency C-section 
        and saved her! -Stephanie 
       
        I don't know. Maybe if 
          I knew why Nora died, 
          I would have known how 
          to prevent it. Maybe if 
          I would have not gone 
          to the hospital when I 
          was in premature labor, 
          I would have just had 
          her, she would have been 
          healthy.. she was fine, 
          I was fine. Everything 
          was perfect that day. 
          I should have never let 
          them stop me....maybe 
          she would be here. -Christine 
       
      of course, i feel like 
        i could have prevented Lily 
        from dying. i feel like 
        if i would have known that 
        placental abruptions existed 
        then i would have known 
        that bleeding alot wasn't 
        normal, if i would have 
        known that bleeding wasn't 
        normal then i would have 
        called 911 and they would 
        have done an emergency c-section 
        and maybe revived her and 
        she would be here right 
        now. maybe if i wouldn't 
        have worked really hard 
        that day i wouldn't have 
        had the placental abruption. 
        if i would have listened 
        to my doctor and not picked 
        up jake or robbie the couple 
        of weeks before maybe i 
        wouldn't have had a placental 
        abruption. maybe if i wouldn't 
        have taken all the stuff 
        for migraines and nauseau 
        it wouldn't have happened. 
        maybe if i wouldn't have 
        taken a shower before i 
        went to the hospital it 
        wouldn't have happened. 
        maybe, maybe, if, if, if. 
        it's my fault. -Melanie 
       
        I often think about the 
          'what ifs,' but in reality 
          I don't think there could 
          have been anything to 
          prevent Charles death, 
          since it was because of 
          a vehicle accident due 
          to another's negligence. 
          The only thing that could 
          have prevented the placental 
          abruption was to not drive 
          at all that day. But I'm 
          not psychic and had no 
          idea that my life was 
          going to change in an 
          instant. It's amazing 
          how much heartache can 
          occur in a life time from 
          a single moment that occurred 
          in a split second. The 
          day I was driving, I didn't 
          even normally take that 
          route. And just think...'what 
          if'...I had gone the normal 
          way...would he have lived? 
          Would an accident have 
          been prevented? I'll never 
          know. -Katie I., Charles' 
          Mommy 
       
      In the very beginning, 
        I had all sorts of reasons 
        why our babies died,for 
        example, from climbing a 
        mountain with a toddler 
        on my back, to the cream 
        I use for my excema, you 
        name it, I took the guilt 
        for it...but as I learned 
        more about pregnancy loss, 
        I came to realize that nothing 
        could have prevented the 
        death of our babies. As 
        my husband always tried 
        to explain to me: "Death 
        is part of life". Don't 
        get me wrong....that still 
        doesn't "fit", 
        but...it's probably true... 
        -Martha 
        
       
       
       Since the loss 
        of my child, I never forget 
        to... 
       
         
        Hug and kiss and cherish 
        sooooo fiercly my living 
        child, Charlie. I am sooo 
        overprotective of him since 
        her death. -Stephanie 
       
        I never forget that life 
          is yet but a moment and 
          not to take things for 
          granted... Because you 
          never know how much time 
          you have... ~Sheila~ 
       
      Since the loss of my child, 
        I never forget to...remember 
        how quickly life can change 
        in an instant, in a heartbeat, 
        in the silence of an ultrasound 
        screen. -Christine 
       
        Connect with women and 
          men who have felt my pain 
          because of their own loss. 
          It is a slight thread 
          back to humanity. It keeps 
          me from hating the entire 
          world. -Melanie 
         
       
      Recognize each person I 
        meet, especially their losses...no 
        matter what that loss may 
        be. I have learned that 
        "a person's pain is 
        their pain"... Since 
        I have learned how it feels 
        to be judged and  
        criticized, I think I have 
        also learned how to accept 
        more lovingly. I am more 
        aware of others....and can 
        cry with them in compassion... 
        -Martha 
      be thankful for the support 
        I've received. And I never 
        forget to give that same 
        compassionate support to 
        others that have suffered 
        a loss. I never forget to 
        acknowledge how short and 
        precious life is and how 
        fast it can change in an 
        instant. I never forget 
        to cherish every moment. 
        I never forget to say "I 
         
        love you" to Charles 
        each night as I lay down 
        to sleep. I know in my heart 
        he can hear me from the 
        heavens above. -Katie I., 
        Charles' Mom 
        
       I would like to 
        have a dream about you, 
        in my dream we would... 
       
         
        walk hand in hand through 
        a mountain meadow of wildflowers, 
        picking them and running 
        and playing in the beauty. 
        Charlie and you would be 
        perfect angels and smile 
        alot......you would say 
        "mommy, I love you." 
        - Stephanie 
       
        In my dream we would 
          be rocking and I would 
          just be holding you and 
          loving you, and looking 
          into your eyes. I would 
          watch you play with Corey 
          and Abby all the baby 
          games they yearn to play. 
          We would spend the day 
          together outside and just 
          soak up the sunshine and 
          the love, but mostly I 
          would hold you and tell 
          you I love you. -Christine 
       
      Hug, talk and spend every 
        moment together for as long 
        as possible. We would have 
        a birthday party for you 
        with your Grandma. And we'd 
        take a trip to the zoo as 
        I know in my heart you're 
        a true animal lover like 
        your Mama. In my dream we 
        would always be together. 
        -Katie I., Mom to Charles 
       
       
        Actually, I already had 
          the dream a couple times. 
          But I would like to have 
          that dream every night 
          if possible. I am riding 
          on a bus to somewhere. 
          Not stressed about public 
          transport, not in a hurry, 
          the bus is not too crowded 
          but there are people filling 
          the seats. The bus hits 
          a little bump and my arm 
          instinctively wraps about 
          the little one who is 
          standing on the seat next 
          to me, looking out the 
          window. I realize it is 
          Kota, maybe three years 
          old. He's giggling at 
          the bump, taking in the 
          outside world as it passes 
          by the window. With my 
          arm around him, I feel 
          safe. His head is just 
          by my head as he stands 
          there and I can lean in 
          to smell his woody, shampoo-ie, 
          little kid head of hair. 
          It is the best smell I 
          have ever smelled in the 
          whole world in my whole 
          life. And everything is 
          *right* -- everything 
          is in that moment, nothing 
          else matters, there is 
          no past, no future, just 
          *that* moment. And it 
          is *right*.  
        I cannot have that dream 
          enough times to satisfy 
          myself in this g-dforsaken 
          life while I'm living 
          out my days without my 
          kid. -K-  
         
       
      In my dream, we (that is 
        Timothy, Annemarie, Dorothy 
        and James) would be all 
        together...just a normal 
        day, (in the summer!) and 
        we'd just "be" 
        together, enjoying the real 
        physical presence... How 
         
        awesome it would be...to 
        see you where you really 
        "belong" in our 
        family, instead of the usual 
        mind-games..."oh...he/she'd 
        be *** years old".... 
        How heavenly the dream, 
        then again...I truly believe... 
        it WILL BE...in heaven...ahhhh... 
        -Martha 
        
       Do you believe 
        that our children are watching 
        over us now? Why or why 
        not? 
       
         
        I really do believe that 
        our children in heaven watch 
        over us. I read a book once...(and 
        don't know the title, sorry...) 
        that said that our loved 
        ones are but a "veil 
        away", that is, that 
        they are so fully present, 
        yet we cannot see the depth 
        of that. I believe that 
        our children inspire me 
        to do, to be pro-active 
        in  
        support and understanding 
        of others. I really do pray 
        to them...to intercede for 
        their family on earth. My 
        friend has convinced me 
        that our little ones are 
        so powerful in their prayer 
        for our needs. No  
        proof, here, just what's 
        deep in my heart. It's what 
        makes my heart feel good 
        about them and their eternal 
        presence... -Martha 
       
        I totally and completely 
          believe they are watching 
          over us. I believe because 
          there are too many things 
          that happen that cannot 
          be explained, the way 
          a rainbow appears for 
          no reason, not a drop 
          of rain in the sky... 
          and only when I am feeling 
          sad , or the way a song 
          comes on that makes us 
          think of Nora everytime 
          we are together as a family, 
          lots of things that just 
          show us our angels are 
          thinking of us and always 
          with us. -Christine 
       
      No, I do not think that 
        they can see us, for Heaven 
        is supposed to be a wonderful 
        happy place, free from pain. 
        And if they could see the 
        pain that we go thru they 
        would not be happy. Therefore 
        I do NOT believe there are 
        holes in the floor of heaven 
        where they are watching 
        over us. I do believe that 
        we have gaurdian angels 
        watching over us, but they 
        are not our babies. Our 
        children may send some of 
        us "messages" 
        in the form of a butterfly 
        or a penny, now and then, 
        but I do NOT believe that 
        can see us! - Stephanie 
       
        Yes, I believe in angels 
          and I believe my Son is 
          one of them that watch 
          over me. He leaves me 
          'signs' that he is around. 
          I keep his teddy bears 
          nicely arranged around 
          the urn. Last night when 
          I went to bed, his bears 
          were all in place. This 
          morning when I got up, 
          I noticed his very first 
          bear had been moved. It 
          didn't fall over, because 
          it was still setting straight 
          up. It was about 6 inches 
          away from the urn resting 
          against some Peter Rabbit 
          books. I moved the bear 
          back to it's place, but 
          5 minutes later I came 
          back into my room to make 
          my bed. The bear had been 
          moved again back to the 
          books. I know it was Charles 
          who moved it. I wonder 
          if he wanted me to stay 
          home and read him a Peter 
          Rabbit tale? Especially 
          since today was the most 
          horrible day ever at work. 
          I think Charles was letting 
          me know he's here for 
          me. It's a very comforting 
          feeling. -Charles' Mom, 
          Katie I.  
       
      I do believe that our angels 
        are watching over us because 
        there are simply too many 
        things that are unexplained. 
        It's like extra-terrestrial 
        life -- in the movie Contact 
        she asks her dad, "Do 
        you think there is life 
        out there?" and he 
        answer, "I don't know, 
        Sport. But if not, that's 
        an awful waste of space." 
        So I don't really know who 
        or what or how we are watched 
        over or what place Divine 
        or Higher Power plays, but 
        I can't ignore the "coincidences". 
      In Jo's Dear Cheyenne book 
        she talks about that incident 
        with Stevie Jo's hand, about 
        that deflatted ratty old 
        balloon, the connections 
        from the Kindness Projects. 
        Just can't ignore all that. 
        And in my own life, at all 
        the moments when I'm ready 
        to give up, cash it in, 
        lay down and die -- some 
        sign comes, something loud 
        and clear and hard to ignore 
        the bump on my head from 
        the bricks falling on it. 
        Since I had all those hypno-therapy 
        sessions and dreams of Kota 
        before he was conceived, 
        where he told me what his 
        work was to be, when he 
        let me in on the signs and 
        symbols that he used -- 
        well, 
        when I see that work unfolding 
        now, when I see those symbols 
        in random places, I just 
        can't ignore all that. 
      And I have two friends 
        who have had babies within 
        the last year. Both of them 
        told me they felt or saw 
        or heard Dakota in the delivery 
        room with them, helping 
        them, helping their chilren 
        -- one of whom was born 
        blue, not breathing, with 
        the cord around her neck. 
        I can't ignore it.  
      Is it Kota? I don't know. 
        But if it isn't, I'm hard 
        pressed to make sense of 
        any of these "coincidences". 
        Maybe it's just random chaos. 
        But what a waste of beauty 
        then??!! ??? I don't know. 
        -K.- 
        
       How can a broken 
        heart possibly still beat? 
       
         
        Maybe it is that it does 
        still beat, but it beats 
        in pieces. It isn't one 
        heart anymore. It is several 
        pieces. And each piece beats 
        a little differently. The 
        rhythm is different now. 
        Some days, I'm perfectly 
        well adapted to the new 
        form of my heart. Other 
        days, this new form makes 
        it very difficult to breathe. 
        Because it isn't just one 
        beat, but several, I have 
        to listen harder -- there 
        isn't just one answer to 
        anything now, there are 
        several possible answers. 
       
      When I was just one beat, 
        I had a naive confidence 
        in that solo, singular beat. 
        There was no question. It 
        was just one.  
      But now with several pieces 
        beating, the confidence 
        is gone. With every beat, 
        I am reminded of what the 
        word "broken" 
        really means.  
      And yet somehow the broken 
        pieces made an expansion 
        -- rivers of space between 
        each piece where compassions, 
        connections, and coincidences 
        flow that I never even knew 
        existed before the break. 
       
      And maybe the hard part 
        is when dealing with people 
        who don't know anything 
        but the singular beat. They 
        can't take their eyes off 
        the beat in order to see 
        the rivers. They are disturbed 
        by the different rhythm 
        and can't hear the music 
        of the different beats. 
        Instead they obsess with 
        trying to make 
        me make my pieces beat the 
        same again -- "like 
        before," they say. 
      I don't know. I guess it 
        does still beat. It will 
        just never, ever beat "like 
        before" again. -K.- 
        
       
        It can't. It doesn't. 
          Our hearts stopped the 
          moment our baby's did. 
           
          And for us, time stood 
          still. 
          My heart isn't beating....it 
          is just functioning enough 
          to keep me alive, until 
          God calls my name. 
          -Stephanie 
       
       A broken heart can still 
        beat. There is hope for 
        brighter days ahead after 
        a loss as long as we keep 
        an open mind to that faith 
        and hope. When I lost my 
        Son, my heart felt like 
        it stopped. A dull pain 
        and heaviness weighed hard 
        on my heart. It was the 
        physical side effects of 
        a broken heart. In reaching 
        out for help, my heart has 
        slowly begun to mend over 
        time. Time does not heal 
        my wounds. And reaching 
        out to others will not fully 
        heal my broken heart. The 
        mending of a broken heart 
        from the loss of a loved 
        one particularly one's own 
        child is a life long process. 
        There will always be bumps 
        in the road of grief. I 
        will always have to take 
        some bad with the good days 
        and visa versa. I feel the 
        choices and paths I have 
        taken to get support and 
        honor Charles has helped 
        me survive such heart ache 
        of loss. -Katie I., Mom 
        to Charles, Born Sleeping 
        on 11/6/1999  
      
        In my opininion (and 
          boy is it an angry one) 
          -- our broken hearts still 
          beat because it is just 
          one more way our body 
          can completely betray 
          us. First, our bodies 
          betray us by letting our 
          children die (at least 
          in some of our cases) 
          and then it betrays us 
          by making us stay alive 
          when we want to die. I 
          think if our hearts actually 
          stopped when they were 
          broken that our world 
          would be minus a lot of 
          people. Me included. 
        -Melanie 
       
        
      We'll have more Q & 
        A in September... 
      
       
        This is a discussion and 
        support group held online 
        thru the free services of 
        Yahoo Groups. Stephanie 
        Marrotek is the host of 
        the Grief Journey Q & 
        A. The full group is moderated 
        by the staff of KotaPress. 
        The answers given in this 
        Q & A were offered by 
        the generous hearts of the 
        members of our online group. 
        We cannot thank you enough 
        for your candor and honesty.
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