by Kara L.C. Jones
So I'm thinking that to raise awareness about PCOS, it might be great
to do a personal journal here at KotaPress about my discoveries and process
with this syndrome. To that end, I'll present monthly entries here to
chart what's happening with my own PCOS diagnosis and care. Maybe it will
help someone else, too. This is presented chronologically with the most
current entry on top.
September 2002
Well the good news is that even with the delay, I did finally have a cycle!
It was exactly one month late. But it was normal in every way. And the
best I can make from that is this: my body can't even handle the natural
carbs/insulin that comes from peaches! But life is too stinking short
to be a freak about this anymore. We've got to find some happy mediums.
I don't mind giving up the sugar thing forever -- even semolina pasta,
I can do without. But red peppers? :)
So we are still trying to find answers and things that work. It's odd,
but this month, I had several people very close to me give birth to beautiful,
healthy children. And I had some interesting things come up for me around
that. I'm interested in solving this PCOS stuff for health reasons --
like I'd rather not die of cervical cancer. But I don't really know that
I'm trying to solve this in order to get pregnant again. I kind of had
some ephipanies about how I like my life. And I love those babies. They
are sweet and wonderful and adorable -- and I love handing them back to
their parents at the end of the day! It's a little like being back in
the child care field of work.
Anyway, that's more of an emotional discovery entry rather than a physical
one. Maybe next month, I'll be able to share more answers from the physical,
medical front??
Miracles!
August 2002
More on the mix of good and bad news. The insurance has started -- just
waiting for the card to arrive in the mail. We were able to work things
out at family services so that I am working an extra 3 hours a week and
that covers the hike in the insurance cost. So now we are off to schedule
appointments!
The not-so-good news is that at the beginning of August, I started to
lose my mind after months of eatting only green veggies and strawberries!
So we introduced red veggies and fruits based on the whole foods ideas.
Also took some risks with fresh, raw corn. Sadly, the result has been
that the August cycle never came. I think that even with no hard sugar
and no flour, wheat, rice, NADA, even without all that, the red veggies
and raw corn are too much. My body can't even process along the lines
of whole foods principles.
So I either go back to greens and strawberries only or I seek some other
additional help with balance of all that -- something like glucophage.
ugh. But that is sort of all speculation for me because I need the ARNP
to confirm all this and then prescribe if we go that way.
So I don't know. Good, bad, sick & tired of greens! I'm beginning
to hate my body all over again. Maybe next month will bring better news
and a more positive perspective??
July 2002
Good news and bad.
So July brought yet another cycle only 30 days after the last! That is
two days later than the first two, but I believe that may have happened
because we were away the weekend prior, and it turned into a high carby
weekend. Think it may have taken those extra couple days for my body to
process and deal with the consequences of that weekend away. But other
than that, it was a "normal" cycle. Seven days total; first
two really heavy with *bad* cramps -- thank goodness for nuclear doses
of nuproxin; last two days really really light. Freaks me out to be having
"normal"-ish things happening to me!
Bad news. Some of the contract work I thought would be steady has turned
out to be a disappointment. Have yet to even get paid for the first 8
weeks of work I did there. So I don't think I can count on that contract
to make the ends meet. Am back to having to rely on my part-time, steady,
on-island gig to pay rent, utility, food basics. Sooooooo, I can't afford
to have anything taken out of that paycheck for health insurance. I'm
going to try and hold out one more month, to have the new insurance and
try to get some things going on the medical front before cancelling --
maybe some other steady contract work will come up in the meantime, too???
But if it's the same picture next month, I have to cancel the insurance.
And then there is just no way to pursue the medical care I should be getting
for this whole PCOS thing. One possibility: there is rumor of a family
planning clinic coming soon. Maybe they would take my case on a sliding
scale fee since this is gynecological in its base, you know? Who knows?
Okay, but I am confident that the nutrition changes to address the insulin
resistance are having *major* effects on my health and lifestyle. And
I'm still working through Thatcher's book which really seems to be the
definitive book on PCOS. One thing he suggests is to stay away from the
stuff of "eating disorder" land and focus on just a healthier
way of life. And as a note, he does suggest in terms of numbers to break
200 lbs and stay there if possible. And then to watch cholestorol, etc.
So, I don't know. It's hard to know given that there is no base line for
me because of the insurance and all. I guess maybe when I can finally
get some serious, on-going care, they could use the tests taken during
our pregnancy as a base line??? If nothing else, the huge base line is
that fact that our baby was born dead, right? Yeah, I know, sarcasm and
bad attitude doesn't help anything. But it's the truth, isn't it?
Arg. Anyway, more next month...here's hoping we can actually pull off
4 "normal" cycles in a row!
June 2002
Freaky. So since I stopped the sugar and carbs, I've had two cycles 28
days apart and each lasting only 5 days each. I cannot tell you how WEIRD
that is. I go months and months with nothing or I get cycles that last
3 months at a time. NEVER do it get "normal-ish" looking cycles
like these.
One was extremely heavy, so much so that it scared me. Baaaaad cramps.
But rashes on my body -- those brown velvety skin ones -- all gone! Can
I tell you how many things I've tried to get ride of those d*mn spots?!
arg. Who freaking knew it would be so simple as cutting out sugar and
carbs! Hello, Kara!
Anyway, I did end up going to a random doc on the island because that
cycle freaked me. He was totally condescending and uneducated about PCOS.
He said the timing on my cycles and rash's disappearance were "coincidence"
and probably had nothing to do with my nutrition changes. Then he proceeded
to tell me that the best way to deal with PCOS is to go on the pill. HELLOOOO!?
Anyone in this room actually go to medical school? GAWD! So I told him
"no way" and that he should read Sam Thatcher's book and should
understand up front that I want answers, not masks. He was like "yeah,
yeah, whatever." I will never see him again.
Good news. The girls at the front desk of the clinic told me that my
insurance will let me see a nurse practitioner instead and still cover.
They recommended a woman there and said she's great. I see her July 15.
Another woman in the community told me she also sees this same nurse practitioner
and that this n.p. is great, very thorough, and interested in patients
as a whole. There's hope.
May 2002
I discovered something called PCOS from a KotaPress reader who wrote to
share her website with us. As I read more and more about PCOS I started
thinking that it all sounded too familiar. Although it seems that no diagnosis
has been made of PCOS for me, there is every indication that this is what
I've been dealing with all along. Discovered the link between PCOS and
insulin resistance for some women. Figure it can't hurt to stop sugar
and carbs for a while and see what happens. Hope to have time this summer
to investigate health care providers who can understand this. We'll see.
Kara lives on Vashon Island which is a much more awesome place than she
ever imagined it would be. She is a poet, bookmaker, wife, teacher, bereaved
mom, facilitator, receptionist, founder, struggling p.t.barnum, turtle
faithful, editor, artist, and a million other things that will prevent
you from putting her in any one particular label box! Kara teaches through
local art centers, artists in the schools programs, KotaPress and independently.
To find out more about her, see:
http://www.KotaPress.com/kara/karajones.htm
Or click here to take an
online class with Kara.
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