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By Joanetta Hendel
Irritations...the world is out to get me. Friends, family, no one can
do anything right. Trivialities I could always let go before now loom
large. Those who offend receive my wrath. Anger smolders near the surface
to erupt at the slightest provocation. My sensibilities are damaged, my
mind one enormous bruise exposed to the world and injured by the slightest
touch. Friends have not forgotten me. They continue to reach out, though
their efforts are often met with displeasure and contempt. It's just me
against the world. This anger consumes all. It's the focal point of my
existence.
I've signed up for painting lessons to fill the time, to fill the void.
Today's artistic attempt must be a still life--a conch shell, a vase,
a music box must be arranged in some pleasing order. But it's all wrong,
there's no life in this shell. I can't get it right. "Shells are
the most difficult," the instructor says. She with the brush, dabs
a little here, a little there.
"Why are you putting red here?" I ask.
"Because I see red," she answers.
But I cannot see red, nor do I see any rhyme or reason to her strokes.
I'm left with a shell I can't recognize.
"Build on the values," she says.
What values?! This is a nonsense I can't handle. I won't remain. I walk
out, never to return.
It's Easter-time and I must shop for the Easter baskets. Going into the
stores, I wish someone would notice Alex's absence and ask about him.
I'm incensed when his life and death are ignored. But when it does happen,
I don't know how to reply. My moods are so sullen, I often surprise myself
in my reaction to others.
We've had a special picture made of Alexander, and the children accompany
me in my search to find just the perfect frame. I've brought the picture,
holding it up to this frame and that. Such a kindly clerk, she meant no
harm. Oh, you don't have that one with you." I want to destroy her
and could have. It was on the tip of my tongue: "No, he's not with
me. He's dead!" But I think better of it and simply reply, "No."
What is it about human beings that make us want to lash out and hurt others
when we are hurt?
In public places I often see parents with tired, fussy children. I have
always cringed when frustrated parents physically abused their small children,
but now my reaction is violent. It upsets me so that I cannot remain nearby
and I want to scream at them that they don't know what they are doing.
I see in that screaming child the suffering of my own dead son.
"Be thankful that you have your other children." How many times
have I heard those words, and how strange and inadequate they sound to
me now. Of course, I'm grateful for the children, grateful to have something
left. But Alex's death is an irreplaceable loss. Why don't these people
know that? "It's meant to be...God's will...he's better off...you've
been chosen as a shining example for others..." Deliver me from people
who have all the answers!
Doctors are high on my list of enemies. Of the six doctors who saw Alex
in the last few months of his life, I'm not speaking to any of them. Phil,
a medical student and personal friend, can see both sides. But today he
looks like a doctor. So much anger--had it not been for a great deal of
wine, I would not have been able to say those things. Years of suppressed
rage and hatred toward the medical community are vented, and he is the
target. My accusations are totally out of order and very unfair. Phil
will allow me my anger and my pain, but friends are hard to come by these
days. I must not abuse the ones I have.
It's Little League season, the first game of the year is ahead of us.
This is my oldest son's activity and has nothing to do with Alex. Or does
it? I've made no mental preparation for this first, allowing it to come
upon me without realizing the implications. Driving to the game, my mind
is racing. Alexander was born during baseball season. He attended his
first game at five days of age, never missing a ball game till now. It
was jubilation that exquisite day, the day of his birth. He had not been
born two minutes when plans were being made for Alex's baseball career.
By the time he could stand, the coaching had begun. And now comes the
total realization that Alexander will never play ball.
I can feel the impending disaster, but it is too late. Entering the gate,
too many sensations, too many people are crowding in on me, These are
summertime friends, many we've not seen since last year. It was inevitable;
it had to happen sooner or later.
"Hello, hello. Good to see you. Where's your little guy--I'll bet
he's getting big?"
"No--he died."
They shrink from us; we've ruined their day. They avoid us like the plague
for the rest of the season. I need not repeat it again and again. The
word spreads like wildfire, and we're spared many more embarrassing encounters.
We're generally ignored and I add it to my growing disgust about people
in general.
We're at a social disadvantage. We can present to the world only what
we are, be that good or bad. There is no finesse for presenting an image
which is not real, to show ourselves in any better light. The social games
that are played on all levels seem ridiculous to me now and totally beyond
my emotional capabilities. Small talk is tedious and the trivialities
that make the world turn seem all but absurd. I can only participate in
open, honest relationships and will accept nothing less in return.
At this point others are ready to see us move on. But for us, the pain
is still acute, the enormity of our loss is only now becoming totally
apparent. While my need for understanding is increasing with each passing
day, the resources of most of my friends to help is nearly exhausted.
Friendships based on my former life may or may not fill current needs
on both sides. Tragedy strips human beings of the protective covering
they use to hide from their own inner fears and insecurities.
The attitudes of others toward us are not so much determined by how much
they care, but rather by their own personal attitude toward life and death.
For some, our situation is far too great a threat to their own personal
equilibrium. They can choose to escape from my pain, but that choice does
not exist for me.
I am becoming more and more selective in seeking out sounding boards,
those to listen, those who can understand. Grief has become too complicated,
too confusing to share with anyone whom has not been personally touched
by crisis. No other perspective can bring any source of strength. As old
friendships are put on hold for "someday" miraculously new support
people surface to fill the void. I've never had a stronger sense of being
watched over and cared for by God Himself. Invariably when the road is
too rocky, the right person is sent to show me the way. Those who can
no longer help in the emotional sense must still be praying for me, because
aside from a weak, "help me," I've little to say to God.
The religious questions hang heavy. Since Alex's death, God and I have
a healthy respect for each other, yet I keep my distance. If anything
my spiritual conviction has multiplied, feeling His presence in the most
unsuspecting ways. I've questioned, not God's existence, but rather His
good judgment and His love for me.
Prayer is still the ultimate stumbling block. Hundreds of prayers were
offered for Alexander's healing. There are those who will argue that Alex
was healed, the most perfect of healing. I cannot disagree, yet this concept
is not compatible with my expectations. I wanted him healthy and alive.
"Ask and you shall receive." Why didn't it work?
Prayers, once food for the soul, now feel strange to me. Each time a
prayerful thought occurs my mind is triggered. Why weren't my prayers
answered?! Why? Why? Why?
Between my husband and me, the mood is abrasive. Small quirks are magnified
out of proportion, little irritations we'd learned to tolerate in each
other years ago come back to haunt us. The old insecurities, those helpless
childhood feelings, come to the surface to get in the way of mature interaction.
We struggle to keep some semblance of our former selves, to tap back into
the safety of the dynamics that allowed our relationship to exist all
these years. I live with the constant fear that another tragedy will befall
us before we have picked ourselves up. That helpless out-of-control feeling
permeates all.
The children are defensive, argumentative, difficult to get along with,
their nerves on edge, their self esteem also hanging in the balance. They
must surely feel as if their existence in life is of no value, that Alexander
was everything to us. It's not so, and yet his loss has become an unreal,
all-consuming focus in our lives.
Joe and Bethany are in constant confrontation, far more damaging and
serious than the normal sibling squabbles. And together the two older
converge on Amanda, tormenting her six-year-old existence. Their world
has fallen in and manifests itself in anger. The three of them are at
each other constantly.
Amanda, who has not shown any outward signs of grief for weeks, suddenly
shares the depths of her emotional turmoil. It's just a minor mother-daughter
confrontation, "Put on your shoes." But it explodes from inside
of her. "My life is ruined. Nobody knows that I have feelings, that
I am sad and that Alex is dead. Nobody cares. My friends don't care. Why
didn't they come to the funeral home? It was for children, too."
Just a baby, but she faces the same social problems we adults face. Many
of her friends have been instructed to avoid talking about Alexander.
To Amanda it is an insult, a sign that they don't care about her or her
grief. Death is part of life and life should not be ignored.
One morning I heard her talking back to Sesame Street. They were singing
a song differentiating living creatures from inanimate objects. Joyful
moppets sang, "I'm alive, I'm alive." And she screamed back,
"So what? My baby brother was alive, and now he's dead!"
Grief represents for us a series of surprises. The fabric of each day
is punctuated by hostility and outrage. We hurt and we fight back, and
our pain manifests itself in anger!
Don't tell me that you understand,
Don't tell me that you know.
Don't tell me that I will survive,
How I will surely grow.
Don't tell me this is just a test,
That I am truly blessed,
That I am chosen for this task,
Apart from all the rest.
Don't come at me with answers
That can only come from me,
Don't tell me how my grief will pass
That I will soon be free.
Don't stand in pious judgement
Of the bonds I must untie,
Don't tell me how to suffer,
And don't tell me how to cry.
My life is filled with selfishness,
My pain is all I see,
But I need you, I need your love,
Unconditionally.
Accept me in my ups and downs,
I need someone to share,
Just hold my hand and let me cry,
And say, "My friend, I care."
Originally published by Bereavement Publishing, Inc. 1-888-604-4673 (HOPE).
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